At 53, Leandro Pérez, a member of the Párkinson Tenerife association, faced a diagnosis of this neurodegenerative disease, which he refers to as a “squatter” that has limited his professional career and daily life. His case exemplifies that the disease can manifest at an early age, contrary to popular belief.
The first signs of the illness appeared in routine tasks, such as brushing his teeth, where he experienced uncontrollable movements. His family and colleagues also noticed symptoms, like dragging a foot, which prompted him to seek medical attention. After six months of consultations, a neurologist confirmed the Parkinson's diagnosis.
“"The first thing you feel is denial; you wonder how it's possible that this is happening to you, but then you start thinking about who can help you."
Due to a lack of information from public administration, Pérez turned to the internet and found the Párkinson Tenerife association, whose headquarters were near his home. This connection opened up a new world for him, providing the support and understanding he needed. He recently participated in a workshop on work disability, a crucial topic for those, like him, diagnosed before retirement.
His situation is unique because during the 18 months he waited for his sick leave resolution, regulations changed. Previously, permanent disability forced companies to terminate employment, but now it is possible to adapt the job. Leandro was one of the first to request this adaptation, thus preventing his finances from being severely impacted by the disease.
We have to advance everything we want to do because perhaps tomorrow will be too late.
Sharing experiences with other members of the association has been fundamental for Pérez, helping him not to feel alone. The younger members of the entity, in particular, have formed a support group where they undergo therapy and find a judgment-free space, demonstrating that, despite the stigma of Parkinson's, it is possible to draw valuable life lessons.
